My Story, Part 7

FULL DISCLOSURE WITH DOC

A FUN DAY September 2017


The clinical trial ended in September 2017 and, therefore, I couldn't possibly be kicked off of it :)


So when my PET scan in September also turned up "all clear" (meaning I had most likely been all clear for 6 months), I decided it was time to "come clean" with my trusted oncologist (who I like and trust very much by the way).


But before disclosing everything to him, I decided I need to do a little "set up" first.


After he very excitedly told me the continued good news of being "all clear" for a second consecutive quarter, I asked him a "very loaded" question. I asked, "Doc, what is really going on here? Can you disclose to me how I am doing versus all of the other patients on the clinical trial with the exact same condition"?


His answer was what I already suspected. He said, "Joe we can't explain it, but you are kind of a sole data outlier right now" Meaning with hundreds of like kind patients, I was the only one with a cure. I knew then my other alternative regimen was largely responsible, but I decided to come clean anyway.


I said, "Doc, I'm glad you told me that about my results within the trial, because I have something to share with you". I proceeded to tell him all about the canine dewormer as I watched his jaw drop :)


His next words I'll never forget (and remember for context he and I had become good friends by this time). He said, "you little shit, I knew there was something up with you.....and....I've had some weird days here at MD Anderson, but this one probably tops them all"


His next sentence almost floored me. He said, "You know, we've known for decades that these anthelmintic class of drugs (meaning to destroy parasites in the intestines) could have possible efficacy against cancer, and in fact in the 80's and 90's there was a drug called Levamisole that was used on colon cancer and it is an anthelmintic drug".


I said, "Doc, if you have known for decades why hasn't more work been done on it?" His answer was honest. He said, "probably because of money...all of these drugs are far off-patent and nobody is going to spend a gazillion dollars to repurpose them for cancer.....only to have generic competition the next day."


I knew he was right.


And he knew I was onto something incredible for me and my story.


Read the last part here or continue my story here